Thank you everyone for your prayers and well wishes...
Today I had the ultrasound and everything looked ok. It looked muscular and not a lump or mass of any sorts.
I still have my annual grand opening* this week so, I will get a seperate opinion on the matter next week.
Thank you again!
*gynecological appointment
Friday, January 8, 2010
With fingers Crossed....
Sydney's neurologist told us that she believes Sydney has grown out of her Panayiotopoulos Syndrome.
I think I have mentioned before that the neurologist believes Sydney did have this condition but the electrophysiologist has questioned it and believed all the spells Sydney ws having were from her Wolff Parkinson White Syndrome .
Will we ever know for sure? Probably not. Was there activity on her EEG's... I guess that would be a yes. Benign Occipital stuff. Dont ask me exactly what it means because in all honesty, I dont know. I do know that I think (LOL) it is in the back of the head down low where some of the activity seen on her EEG was occurring.
Sydney has NOT been complaining of headaches as she usually did which we believe had a lot to do with the complete chaos in her classroom last year. Her teacher this year is absolutely incredible and is ON TOP of Sydney like flies on shit. Sydney really enjoys school and is doing incredible. She has caught up from the deficit she experienced from her crappy classroom last year. She loves math and just everything about school.
Now.... the current recommendations that the neurologist does have....
*go to another ENT and have her tonsils and adenoids looked at and hopefully removed.
---- this is due to her evaluation with the speech and hearing people. She seems to have a lisp on her S and her Z sounds which would not be developmental at her age right now. So, the neurologist wants this to be something the school does address with some speech stuff.
---- Also, back in early november 2007 (when I was ginormously pregnant with CJ) Sydney had a sleep study and it did show some "minor" apnea stuff.
---- Sydney continues to be a mouth breather and pushes her tongue forward in her mouth (even though there is also a spacer there)
---- The last ENT we had gone to told me Sydney had poor nasal hygiene and recommended a sweat test ... OK... great... That solves WHAT?!!?!? then sends us away with some medicine. Awesome. That was not the 1st medication pushing ENT we went to. And a SWEAT test? She has NEVER exhibited ANY symptoms for Cystic Fibrosis and me and Chris went to genetic counseling and there was NO WAY we were carriers for it.
*We need to go back to the audiologist and have CAPD ruled out/in.... Still a questions as Sydney has issues with her working memory and comprehension. I thought after speech and hearing appointment she had "passed" with "flying colors" the "only one who ever scored 100% on a test she had administered".... but, the report is different. there are areas to address. (Central Auditory Processing Disorder) This seems to be something that her neurologist, pediatrican believe will be the case vs. the ADHD NOS she got on her psychological evaluation which can present similar to the CAPD.
*The neurologist also wants the school to do some occupational therapy for Sydney and her issues with pencil pressure and not being aware of her muscle strength. Tone issues or something.
So, all in all it was a good and informative appointment.
On Martin Luther King Jr. day we go to the Cardiologist to check up on her WPW. (Wolff Parkinson White)... Thankfully Chris will be able to go to this appointment. We do not want her released from Cardiology because we have read many personal stories of children with WPW and IT COMES BACK..... Scary. And of course the way Sydney's was "cured" was the "less reliable" and has more of a percentage of reoccuring. I don't know if there is a solid time frame for this reoccurance.. but, we dont want to take any chances either. Especially with her history of pulling crazy things out of the bag in regards to her medical history.
Like her mother she is a Zebra in a pack of horses....
I think I have mentioned before that the neurologist believes Sydney did have this condition but the electrophysiologist has questioned it and believed all the spells Sydney ws having were from her Wolff Parkinson White Syndrome .
Will we ever know for sure? Probably not. Was there activity on her EEG's... I guess that would be a yes. Benign Occipital stuff. Dont ask me exactly what it means because in all honesty, I dont know. I do know that I think (LOL) it is in the back of the head down low where some of the activity seen on her EEG was occurring.
Sydney has NOT been complaining of headaches as she usually did which we believe had a lot to do with the complete chaos in her classroom last year. Her teacher this year is absolutely incredible and is ON TOP of Sydney like flies on shit. Sydney really enjoys school and is doing incredible. She has caught up from the deficit she experienced from her crappy classroom last year. She loves math and just everything about school.
Now.... the current recommendations that the neurologist does have....
*go to another ENT and have her tonsils and adenoids looked at and hopefully removed.
---- this is due to her evaluation with the speech and hearing people. She seems to have a lisp on her S and her Z sounds which would not be developmental at her age right now. So, the neurologist wants this to be something the school does address with some speech stuff.
---- Also, back in early november 2007 (when I was ginormously pregnant with CJ) Sydney had a sleep study and it did show some "minor" apnea stuff.
---- Sydney continues to be a mouth breather and pushes her tongue forward in her mouth (even though there is also a spacer there)
---- The last ENT we had gone to told me Sydney had poor nasal hygiene and recommended a sweat test ... OK... great... That solves WHAT?!!?!? then sends us away with some medicine. Awesome. That was not the 1st medication pushing ENT we went to. And a SWEAT test? She has NEVER exhibited ANY symptoms for Cystic Fibrosis and me and Chris went to genetic counseling and there was NO WAY we were carriers for it.
*We need to go back to the audiologist and have CAPD ruled out/in.... Still a questions as Sydney has issues with her working memory and comprehension. I thought after speech and hearing appointment she had "passed" with "flying colors" the "only one who ever scored 100% on a test she had administered".... but, the report is different. there are areas to address. (Central Auditory Processing Disorder) This seems to be something that her neurologist, pediatrican believe will be the case vs. the ADHD NOS she got on her psychological evaluation which can present similar to the CAPD.
*The neurologist also wants the school to do some occupational therapy for Sydney and her issues with pencil pressure and not being aware of her muscle strength. Tone issues or something.
So, all in all it was a good and informative appointment.
On Martin Luther King Jr. day we go to the Cardiologist to check up on her WPW. (Wolff Parkinson White)... Thankfully Chris will be able to go to this appointment. We do not want her released from Cardiology because we have read many personal stories of children with WPW and IT COMES BACK..... Scary. And of course the way Sydney's was "cured" was the "less reliable" and has more of a percentage of reoccuring. I don't know if there is a solid time frame for this reoccurance.. but, we dont want to take any chances either. Especially with her history of pulling crazy things out of the bag in regards to her medical history.
Like her mother she is a Zebra in a pack of horses....
Five Question Friday
Wow Mama M!! You are SO good at keeping up with the 5QF! I am impressed!!! So, here we go!!! Dont forget to join in the fun!
1. What's your "comfort food"?
Look at me! Cant you tell ALL foods comfort me?!?!?! In all seriousness, I love going out to eat and that is comforting! HA! As long as nobody at the table is SCREAMING. I DO have cravings for french fries, hot... crispy and SALTY! YUM! if it has to be sweet... I totally love a good piece of cheesecake!
2. Do you send Thank You's (handwritten or email)?
I try to remember to send them via regular mail but, I dont typically write them. I like to do the photo thank you cards from walmart. Then I mail those out.
3. If you had to be trapped in a TV show for a month, which show would you choose?
Good lord... I dont know. How bout HOUSE. That would be a fun one!
4. What is your favorite online recipe site?
hands down allrecipes.com
5. If you had to choose: "Friends" or "Seinfeld"?
Neither. Never got in to either one. I guess Friends would be more of my pace though.
Thursday, January 7, 2010
What a pain in the butt boob
For a couple of weeks not I have been having some pain in my left breast. I am starting to think that every time I have a twinge of pain in my body I need to put it on a calendar in case I have to make an appointment for it. I certainly look like an idiot when I cant exactly pinpoint when an issue started. It might also have to do with the fact I also have to keep track of 4 kids aches and pains too.
Anyways, back to the boob. I thought maybe I had injured it while climbing under Kiley's bed in search of her Wall-E game for her leapster. Or, maybe CJ had squished it in one of his attempts to climb me in the middle of a tantrum. I had been searching for lumps to make sure the pain was not from some scary C word. I couldnt find any "lumps"... I guess I dont know exactly what I am looking for because the doc didnt take long today to find a "lump" that could be "a cyst or blocked duct" .... so, tomorrow I get to go in for an ultrasound to try and rule things out. I have to admit that I am scared. I was hoping to go in today and have them just find something muscular and send me out with the Navy favorite of Vitamin M* and be done with it. But no. I guess my body has other ideas. I feel like a decrepit old person. Between the issues with my right leg which are not resolved and I have to schedule physical therapy for. The constant nagging of my symptoms from my Hashimoto's disease (hypothyroid) and NOW THIS..... I CANT stand it. Next week is my annual GYN grand opening appointment. Maybe he will have some more insight in to this problem too. I think it stems from getting my tubes tied but who am I? Oh, and I had an issue in the same breast back in 2005/2006 when we were living in Texas. Dont know where that history went to.... my record looked pretty puny today... So, Who knows. I dont think they saw anything spectacular back then either. We will see. Tomorrow, boob probing. Oh, and for the record, I have not nursed my son since April of last year... but maybe this is in correlation to my menstrual cycle..... Dont know. So, if you can, please keep my in your prayers that this is something benign.... Thank you.
*Motrin
Anyways, back to the boob. I thought maybe I had injured it while climbing under Kiley's bed in search of her Wall-E game for her leapster. Or, maybe CJ had squished it in one of his attempts to climb me in the middle of a tantrum. I had been searching for lumps to make sure the pain was not from some scary C word. I couldnt find any "lumps"... I guess I dont know exactly what I am looking for because the doc didnt take long today to find a "lump" that could be "a cyst or blocked duct" .... so, tomorrow I get to go in for an ultrasound to try and rule things out. I have to admit that I am scared. I was hoping to go in today and have them just find something muscular and send me out with the Navy favorite of Vitamin M* and be done with it. But no. I guess my body has other ideas. I feel like a decrepit old person. Between the issues with my right leg which are not resolved and I have to schedule physical therapy for. The constant nagging of my symptoms from my Hashimoto's disease (hypothyroid) and NOW THIS..... I CANT stand it. Next week is my annual GYN grand opening appointment. Maybe he will have some more insight in to this problem too. I think it stems from getting my tubes tied but who am I? Oh, and I had an issue in the same breast back in 2005/2006 when we were living in Texas. Dont know where that history went to.... my record looked pretty puny today... So, Who knows. I dont think they saw anything spectacular back then either. We will see. Tomorrow, boob probing. Oh, and for the record, I have not nursed my son since April of last year... but maybe this is in correlation to my menstrual cycle..... Dont know. So, if you can, please keep my in your prayers that this is something benign.... Thank you.
*Motrin
Wednesday, January 6, 2010
Monday, January 4, 2010
The little things...
I was blog hopping and stumbled upon Susie and her "little things" ....
It is often the hurried lives we live that often make us not embrace the "little things"... sometimes these "little things" can often be perceived as something frustrating or bothersome... but when you really stop and think about it... it is something important...
like....
*when it isnt even 5am and my 5 year old little girl quietly climbs over the gate in the hallway without hurting herself... and climbs in to bed with me. Warm and cozy, taking up most of my 1/2 of the bed.... perfect.
*my 5 year old won't fall back asleep at not even 5am. She wants something to eat and to watch The Little Mermaid on The Disney Channel... with LOTS of volume. I can hear her little teeth crunching her cinnamon toast crunch.... then she wants a drink... even though it is tough at almost 5 am... she is so innocent and peaceful. And her face is so sweet and fresh. Even though it is irritating to be up so early, it is a special time.
*When daddy gets up to go to work, I grab my still awake 5 year old and bring her back to bed with me. She snuggles, and wriggles, and puts her arm over my back. She nuzzles her head in to my neck and I can hear her sweet breathing. And her little conversations about nothing much at all. It is now past 6am. It is OK though. This is a quiet, special time.... and she will only be "just 5 years old" now and never again.... and it is perfect.
So, do you have any "little things" that can often be overlooked....
One more for good measure...
*while cleaning out the couch cushions looking for that missing Leapster game... even though I KNOW I have looked there... and I know my effort will be fruitless.... my son finds a piece of a dog treat and starts running through the house calling "Rosa" and "Hudson" as best as a newly 2 year old can.... and the sweet thrill of victory when he was able to hand off to one of the eager pups.
It is often the hurried lives we live that often make us not embrace the "little things"... sometimes these "little things" can often be perceived as something frustrating or bothersome... but when you really stop and think about it... it is something important...
like....
*when it isnt even 5am and my 5 year old little girl quietly climbs over the gate in the hallway without hurting herself... and climbs in to bed with me. Warm and cozy, taking up most of my 1/2 of the bed.... perfect.
*my 5 year old won't fall back asleep at not even 5am. She wants something to eat and to watch The Little Mermaid on The Disney Channel... with LOTS of volume. I can hear her little teeth crunching her cinnamon toast crunch.... then she wants a drink... even though it is tough at almost 5 am... she is so innocent and peaceful. And her face is so sweet and fresh. Even though it is irritating to be up so early, it is a special time.
*When daddy gets up to go to work, I grab my still awake 5 year old and bring her back to bed with me. She snuggles, and wriggles, and puts her arm over my back. She nuzzles her head in to my neck and I can hear her sweet breathing. And her little conversations about nothing much at all. It is now past 6am. It is OK though. This is a quiet, special time.... and she will only be "just 5 years old" now and never again.... and it is perfect.
So, do you have any "little things" that can often be overlooked....
One more for good measure...
*while cleaning out the couch cushions looking for that missing Leapster game... even though I KNOW I have looked there... and I know my effort will be fruitless.... my son finds a piece of a dog treat and starts running through the house calling "Rosa" and "Hudson" as best as a newly 2 year old can.... and the sweet thrill of victory when he was able to hand off to one of the eager pups.
Friday, January 1, 2010
A new year.... huge changes...
Notes: My oldest daughter will be 10, Sydney will be 8 1/2, Kiley will be 5 and CJ will be 2 1/2. My oldest 2 have very strong bonds with their grandparents and given the opportunity to move near grandma and grandpa, they would jump regardless of anything else. My youngest do not have the same bonds with the grandparents as the older 2 because we have lived far from them for the most part of their lives. I would love to foster a stronger bond for them.
My mother's health has not been as good as we would like. I would like to take the time to share with her. We are praying for good things to happen for her... It kills my parents to be away from the kiddos and how they ended up in Florida instead of RI was a huge mish mosh of a mess because of my grandmother passing and selling the house. anyways. I wouldnt want to regret not taking the time to be near my parents when the opportunity arose....
My parents just closed on a house in the middle of December so they are in Florida to stay.
They have a close knit community at their church which I know would be welcoming of me and my children. We spent Thanksgiving with that community.
**I will update more notes as I think of them! or anyone asks anything to help them decide what THEY would do in this situation!
Well, here we are... it is 2010. A new decade.
Last decade was definitely a memorable one. We rang in the year 2000 on the patio of some good friends of ours in Hawaii. We were some of the lucky ones and our husbands were not out to sea on that memorable New Years eve where we all did not quite know what was going to happen. You know... all the Y2K hype. I have to admit... it really got me nervous thinking about all the doom and gloom that some people (aka ME) were anticipating. I was hugely pregnant with my first born. There were crazy fireworks being lit off in all directions. I dont know how many of them were legal.... Wouldnt you know... on the morning of January 1st 2000.... all my silly little flowers I had growing in pots on OUR patio were all wilted and dead! I think all the firework smoke got to them! Oh, and I can tell you now... my almost 10 year old daughter HATES fireworks!!! HATES them. She HAS to cover her ears to this day! I think she was severely damaged by all of those loud, probably not legal, fireworks people were lighting off!
Anyways.... 10 years later... I can NOT believe it!!!! It certainly has a way of making a person feel MUCH older.
We spent the night at our next door neighbors house who we have lived next to (shared walls) since we moved here to Connecticut in June of 2006. This year... it will all end.
Our neighbor will be retiring from the Navy in June. And then, 1 month later my husband will be deploying to Diego Garcia. For a YEAR. That is a long time to be seperated from a loved one. Dont get me wrong... we are certainly counting out blessings that he is not (rather, should not... anything can change in an instant with th military) going to Iraq or Afghanistan for 16 months. So, it is a blessing he was able to be selected for these orders.
The big dilemma is... what do I do??? I get so panicked when I think of the whole aspect of ALONE... with 4 kids.... I have several options for things I can do. I do not know what all the stipulations are because it is the Navy... and there are so many different things that come in to play.
Option #1... I can stay here in CT. The kids could complete another year at their current schools... there would not be a need for changes in doctors/dentists/sports/school... you know. Status quo. They have a routine here. They have friends (although many of their friends do move because they go to school with a whole bunch of other Navy brats) so... their friends change all the time. Regardless. Their neighbors change. Regardless. There are alot of tides of change being a military family. Sydney has many different docs here but, in all honesty... I dont know how much longer she will be needing them. I wont put all my eggs in that basket though because Sydney is certainly a Zebra in a field of horses. Nothing would change... I would just be here in Connecticut with some decent friends. Some of my good friends will be moving at the same time we have to make our changes. These friends being some of the most reliable ones. The ones I can call on in an instant. Other friends have many other commitments. Oh, and we cant forget that fact that I have a hard time asking people for help. I feel that the kids are mine, they are my responsibility. And if I need a break, I dont have the $$$ to be paying for babysitters. Can you imagine trying to figure out Christmas shopping with 4 kids and nobody to depend on?! I mean, I could PAY someone... but that is money I would probably have allotted for that big Guitar Set, Train Table, DSi, Electric Guitar... you know.
I think a million steps ahead of myself. I just know that I would feel like a burden asking anyone for help. It is just in my nature. It is who I am. Nobody else birthed these children, they are my responsibility. And I have a hard time trusting people outside my immediate family. Not that anyone would do a bad job caring for them, I just think I am the one who knows how to care for them best.
Option 2. I could move to Florida and be near my family. Not have to worry about shoveling snow. Not have to worry about who I could call in the middle of the night should an emergency arise. Not have to worry about who would help me out because I am barfing my guts out or something incredible like that. I would be able to spend a year near my parents that I would not have had the opportunity to have any other way. And then, after the year, go on our merry way. Reunited with my husband and living in another place. The kids love spending time with my parents.
Option 3. Move near Ali who is ready to move us in her house! LOL!
Option 4. Good luck, I have no idea what I would do.
Of course every option has its pros and cons and I keep playing them over and over... and If I do move, I may have to pack our house up on my own. Dont know if the Navy would move us only to move us again in a year.
I dont know. I dont know. I dont know...
2010 will NOT be an easy year... It isnt something I look forward to. This has to be one of the toughest decisions I have to make.... I have to make the BEST decision for myself and my children. I have to be a GOOD parent... and a GOOD parent could be here... or it could be there... I dont know. So many different things define a GOOD parent. And can I be a GOOD parent without many breaks for MYSELF.
I dont know.
My mother's health has not been as good as we would like. I would like to take the time to share with her. We are praying for good things to happen for her... It kills my parents to be away from the kiddos and how they ended up in Florida instead of RI was a huge mish mosh of a mess because of my grandmother passing and selling the house. anyways. I wouldnt want to regret not taking the time to be near my parents when the opportunity arose....
My parents just closed on a house in the middle of December so they are in Florida to stay.
They have a close knit community at their church which I know would be welcoming of me and my children. We spent Thanksgiving with that community.
**I will update more notes as I think of them! or anyone asks anything to help them decide what THEY would do in this situation!
Well, here we are... it is 2010. A new decade.
Last decade was definitely a memorable one. We rang in the year 2000 on the patio of some good friends of ours in Hawaii. We were some of the lucky ones and our husbands were not out to sea on that memorable New Years eve where we all did not quite know what was going to happen. You know... all the Y2K hype. I have to admit... it really got me nervous thinking about all the doom and gloom that some people (aka ME) were anticipating. I was hugely pregnant with my first born. There were crazy fireworks being lit off in all directions. I dont know how many of them were legal.... Wouldnt you know... on the morning of January 1st 2000.... all my silly little flowers I had growing in pots on OUR patio were all wilted and dead! I think all the firework smoke got to them! Oh, and I can tell you now... my almost 10 year old daughter HATES fireworks!!! HATES them. She HAS to cover her ears to this day! I think she was severely damaged by all of those loud, probably not legal, fireworks people were lighting off!
Anyways.... 10 years later... I can NOT believe it!!!! It certainly has a way of making a person feel MUCH older.
We spent the night at our next door neighbors house who we have lived next to (shared walls) since we moved here to Connecticut in June of 2006. This year... it will all end.
Our neighbor will be retiring from the Navy in June. And then, 1 month later my husband will be deploying to Diego Garcia. For a YEAR. That is a long time to be seperated from a loved one. Dont get me wrong... we are certainly counting out blessings that he is not (rather, should not... anything can change in an instant with th military) going to Iraq or Afghanistan for 16 months. So, it is a blessing he was able to be selected for these orders.
The big dilemma is... what do I do??? I get so panicked when I think of the whole aspect of ALONE... with 4 kids.... I have several options for things I can do. I do not know what all the stipulations are because it is the Navy... and there are so many different things that come in to play.
Option #1... I can stay here in CT. The kids could complete another year at their current schools... there would not be a need for changes in doctors/dentists/sports/school... you know. Status quo. They have a routine here. They have friends (although many of their friends do move because they go to school with a whole bunch of other Navy brats) so... their friends change all the time. Regardless. Their neighbors change. Regardless. There are alot of tides of change being a military family. Sydney has many different docs here but, in all honesty... I dont know how much longer she will be needing them. I wont put all my eggs in that basket though because Sydney is certainly a Zebra in a field of horses. Nothing would change... I would just be here in Connecticut with some decent friends. Some of my good friends will be moving at the same time we have to make our changes. These friends being some of the most reliable ones. The ones I can call on in an instant. Other friends have many other commitments. Oh, and we cant forget that fact that I have a hard time asking people for help. I feel that the kids are mine, they are my responsibility. And if I need a break, I dont have the $$$ to be paying for babysitters. Can you imagine trying to figure out Christmas shopping with 4 kids and nobody to depend on?! I mean, I could PAY someone... but that is money I would probably have allotted for that big Guitar Set, Train Table, DSi, Electric Guitar... you know.
I think a million steps ahead of myself. I just know that I would feel like a burden asking anyone for help. It is just in my nature. It is who I am. Nobody else birthed these children, they are my responsibility. And I have a hard time trusting people outside my immediate family. Not that anyone would do a bad job caring for them, I just think I am the one who knows how to care for them best.
Option 2. I could move to Florida and be near my family. Not have to worry about shoveling snow. Not have to worry about who I could call in the middle of the night should an emergency arise. Not have to worry about who would help me out because I am barfing my guts out or something incredible like that. I would be able to spend a year near my parents that I would not have had the opportunity to have any other way. And then, after the year, go on our merry way. Reunited with my husband and living in another place. The kids love spending time with my parents.
Option 3. Move near Ali who is ready to move us in her house! LOL!
Option 4. Good luck, I have no idea what I would do.
Of course every option has its pros and cons and I keep playing them over and over... and If I do move, I may have to pack our house up on my own. Dont know if the Navy would move us only to move us again in a year.
I dont know. I dont know. I dont know...
2010 will NOT be an easy year... It isnt something I look forward to. This has to be one of the toughest decisions I have to make.... I have to make the BEST decision for myself and my children. I have to be a GOOD parent... and a GOOD parent could be here... or it could be there... I dont know. So many different things define a GOOD parent. And can I be a GOOD parent without many breaks for MYSELF.
I dont know.
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